The Great Divide

Today was a good day. It was a really good day. This morning we made a big breakfast complete with blueberry muffins, bacon, cereal and juice. Blake ate a ton of bacon, a bite of blueberry muffin, a handful of cheetos and a sippy cup with 2 ozs of his formula. It was a huge breakfast. Most of this is due in part to the fact that he's finally got his meds back on board. His GI meds help. A lot. So after breakfast he got his 4 morning meds and EVERYONE suited up to head outside and BOY. Did we have fun.

They hugged. They played. They threw snowballs. 

The laid in the snow and smiled. 

They were almost in snow up to their knees. It was glorious. 

Then we came in, had some hot chocolate, (warm formula for Blake) took a bath, had some lunch, B took 2 more meds, and everyone took a nap. 

It was normal. That's the important part. It all felt normal. If you remove the 10 meds that Blake had before 7:30, it was a normal day. But then after dinner it was time to clean. 

Blake's room had become a disaster area after a most recent shipment of Medical equipment, new organizational basket shopping, clean laundry. and a toy explosion. It had gotten out of hand and I decided that it might be best if David, Wes and Blake cleaned Wesley's room. 

Once I got the room cleaned, I saw it. The Great Divide. I try to ignore it on a daily basis. Some days I am successful at not seeing it, but today I saw it. And so here I am, blogging away so it doesn't eat at me tomorrow and the days afterwards. 

I could literally draw a line right down the middle of Blake's room. On one side there's toys and books and train tracks and a tricycle and stuffed animals. Everything a kid his age should have. 

And then there's the other side. The medical side. Once the room was clean and the toys had their place and the medical equipment had it's place, it was obvious. I ignore it when I can. Once I cleaned up, I couldn't ignore it anymore. It's an obvious, visual reminder of the fact that even on the good days, days like today, he is still compromised. We are still looking for answers. He is still sick and struggling on a daily basis to grow and thrive and be well. 

(IV pole with Feeding pump and hospital grade BP Machine, Pediatric Weight Scale, miniature IV pole, 3-drawer cabinet with formula bags, ferrel bags and med supplies)

(Nebulizer, glucometer and supplies, travel BP monitor, tube supplies and urine collection supplies)

After cleaning the room, I sure am glad that we had this moment. It makes The Great Divide seem smaller and smaller every time I look at it.